About IBD

Amber and gastroenterologist Dr Neil Parikh discuss technology’s impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers. They also address concerns about data privacy, integrating holistic approaches in patient care, and the potential of wearable technology in gastroenterology. Find Neil D. Parikh, MD at: Web: Connecticut GI LinkedIn: Neil D. Parikh, MD Find The Gut Doctor Podcast at: RSS feed Apple Podcasts Spotify All other podcast apps Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD174 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

People with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told this, even though there is now significant evidence that diet absolutely matters in IBD. Stacey Collins, MA, RDN/LDN describes how her journey with ulcerative colitis led to j-pouch surgery. Her philosophy as a registered dietician is one of “nutrition by addition" rather than by dietary restriction. Stacey also focuses on the emotional aspects of eating with IBD, including the understandable fear and anxiety around food. Topics discussed: The role of diet in managing inflammatory bowel disease (IBD). Personal experiences with ulcerative colitis and dietary management. The misconception that diet does not impact IBD management. The philosophy of "nutrition by addition" versus dietary restrictions. The importance of individualized dietary approaches for IBD patients. The impact of food on gut health and bacterial diversity. Emotional aspects of eating with IBD, including fear and anxiety around food. The significance of finding joy in cooking and eating. Practical dietary recommendations for IBD patients, including the Mediterranean diet. The importance of community support and connection in managing IBD. Find Stacey Collins, MA, RDN/LDN at: Stacey Collins Nutrition: https://www.staceycollinsnutrition.com/ Twitter: @staceynellc_rd Instagram: @staceynellc_rd LinkedIn: @stacey-cutler-collins Publications from Stacey Collins, MA, RDN/LDN: Scarlata K, Zickgraf HF, Satherley RM, et al. A Call to Action: Unraveling the Nuance of Adapted Eating Behaviors in Individuals with GI Conditions. Clin Gastroenterol Hepatol. Published online December 14, 2024. doi:10.1016/j.cgh.2024.11.010 Collins S, DIGID Inflammatory Bowel Diseases Workgroup. Iron in GI conditions. Patient.Gastro.org. 2024. https://patient.gastro.org/iron-in-gi-conditions/ Collins S, Castelan VC, Wernick R, et al. Effects of nutrition status and perioperative nutrition supplement completion on postoperative outcomes in patients with inflammatory bowel disease undergoing surgery. Gastroenterology. 2024;166(3):S22-S23. doi:10.1053/j.gastro.2023.11.081 Collins S. Surgery and Nutrition. Crohn’s & Colitis Foundation. 2024. https://www.crohnscolitisfoundation.org/patientsandcaregivers/diet-and-nutrition/surgery-and-nutrition. Nishioka H, Hasegawa Y. Addressing sarcopenia in people with disabilities: definition, assessment, and nutritional care. Medical Nutrition Matters. Reviewed by Collins S. October 1, 2024. https://www.eatrightstore.org/dpg-and-mig-products/dmnt/addressing-sarcopenia-in-people-with-disabilities-definition-assessment-and-nutritional-care. Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD 173 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

IBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn's disease at just 13 years old. She turned her experiences with IBD into a mission to help others by founding Infusion Hero, a company that designs innovative hoodies specifically for young patients receiving infusions. Infusion Hero hoodies provide comfort and feature a unique design that allows for easy access during medical treatments. Rachel shares her story of navigating the challenges of her diagnosis, balancing high school, and running a business—all while maintaining her health and staying connected with friends. Don't miss Rachel's insights on how to turn personal challenges into opportunities for growth and innovation. Discussion points include: Personal health journeys related to inflammatory bowel disease (IBD) Experiences of living with Crohn's disease as a teenager The impact of chronic illness on daily life and activities The importance of education and support for young patients with IBD The creation and purpose of Infusion Hero, a clothing line for infusion patients Balancing health, school, and entrepreneurial endeavors The role of mentorship and resources for young entrepreneurs Emotional aspects of managing chronic illness during adolescence The significance of community support and relationships with peers and teachers Future aspirations and educational goals for young patients and entrepreneurs Find Rachel Bee of Infusion Hero at: Web: https://www.infusionhero.com/ LinkedIn: Rachel Bee Facebook: Infusion Hero Instagram: @infusion_hero Tik Tok: @infusion.hero Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD172 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

It's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and succeed at work while caring for ourselves. I talk with Jen Hubley Luckwaldt about how freelancing can be a valid way of meeting both goals. Jen shares her journey from traditional employment to freelancing, including how it offers her flexibility in balancing work, health, and family. We talk about the importance of setting boundaries with clients, how to identify your marketable skills, and building a supportive community. Jen emphasizes the value of an abundance mindset in freelancing and offers practical tips for finding work and managing time effectively. If you've ever wondered how you can manage to work while still making it to infusions and appointments: we have a roadmap for you. Episode highlights: Find Jen Hubley Luckwaldt and The Job Hopper at: The Job Hopper: https://thejobhopper.substack.com Bluesky: @jenlucky.bsky.social Old Mom Things: https://oldmomthings.substack.com/ LinkedIn: @jen-hubley-luckwaldt Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD 171 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to manage clutter, even when flaring. We discuss practical strategies for decluttering both your physical space and mental load, and how to celebrate even the smallest victories in your day-to-day life. Plus, Lisa reveals her insights on creating systems that work for you, no matter your circumstances. If you’ve ever felt weighed down by expectations or struggled to find balance, this episode is packed with valuable takeaways that can help you reclaim your time and energy. Key points: Episode sponsored by Connecting to Cure Crohn's and Colitis. Find Lisa Zawrotny of Positively Productive Systems at: Web: www.positivelyproductive.com LinkedIn: @positivelyproductive Facebook: @positivelyproductive Twitter: @positively_lisa Instagram: @positively_lisa YouTube: @positively_lisa Tik Tok: @positivelylivingpodcast Pinterest: @positivelyproductive Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD170 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Danielle Barlieb was diagnosed with Crohn's disease in childhood. She discusses her experiences with diagnosis, surgeries, and becoming a mother, including the challenges of a permanent ileostomy. Danielle emphasizes the importance of mental health, sharing her struggles and the support she received from her family. She also talks about dating with an ostomy, encouraging others not to let fear hold them back. Finally, she highlights her son's interests and the joy he brings to her life, along with resources for women with inflammatory bowel disease. Information and resources discussed on this episode include: National Alliance on Mental Illness Suicide Hotlines and Prevention Resources Around the World Girls with Guts Camp Oasis IBD Parenthood Project PIANO (Pregnancy Inflammatory bowel disease And Neonatal Outcomes) Study Find Danielle Barlieb at: Tik Tok: @always.danielle.barlieb Instagram: @always.danielle.barlieb Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD169 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that intersecting identities have on people's health outcomes. Plus, we talk about Cass' web site, PrideAndPoop.com, what his hopes are for the future, and what there is to do in Oklahoma. Find Cass Condray at: Web: Pride and Poop Bluesky: @cdalecondray.bsky.social LinkedIn: Cass Condray Google Scholar: Cass Dale Condray Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD168 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision to have j-pouch surgery after being diagnosed with dysplasia and the effects it had on her fertility. Jamie asks Amber to share about the emotional and physical challenges of motherhood with IBD, including fatigue and guilt. They also touch on the possibility of passing IBD on to children and the importance of community and support. Concepts discussed on this episode: Xue M, Leibovitzh H, Jingcheng S, et al. Environmental Factors Associated With Risk of Crohn's Disease Development in the Crohn's and Colitis Canada - Genetic, Environmental, Microbial Project. Clin Gastroenterol Hepatol. 2024;22(9):1889-1897.e12. doi:10.1016/j.cgh.2024.03.049. Singh N, Bernstein CN. Environmental risk factors for inflammatory bowel disease. United European Gastroenterol J. 2022;10(10):1047-1053. doi:10.1002/ueg2.12319. Oh SJ, Kim HJ, Lee CK; Big Data Research Group (BDRG) of the Korean Society of Gastroenterology. A dose-dependent increase in the risk of inflammatory bowel disease after exposure to broad-spectrum antibiotics: A national population study in Korea. Aliment Pharmacol Ther. 2023;58(2):191-206. doi:10.1111/apt.17542 Growing Up With a Dog Might Lower Crohn’s Risk My IBD Life Parenthood Project Inflammatory Bowel Disease (IBD): Everything You Need to Know Find Jaime Holland at: Facebook: @prettyrottenguts Instagram: @prettyrottenguts Tik Tok: @prettyrottenguts Bluesky: @prettyrottenguts.bsky.social Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD167 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Amber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the surgery itself and the recovery process that followed. Mike shares his insights on the challenges he faced, including unexpected pain, dietary adjustments, and the importance of having a supportive caregiver. They also discuss the nuances of patient-provider communication and how to navigate the complexities of post-surgery life. Whether you’re considering surgery or simply curious about the process, this episode offers valuable lessons and firsthand experiences that might resonate with you. Episode transcript and more information at: https://bit.ly/AIBD166 Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstar Instagram: @world_of_welstar Facebook: @worldofwelstar MeWe: http://tinyurl.com/MeWeTRPG Threads: http://tinyurl.com/threadsWOW Bluesky: https://blskyl.ink/worldofwelstar Amazon: http://amzn.to/41jMn5h EN World: http://tinyurl.com/ENWRPG Drive Through RPG: http://tinyurl.com/DTRPGMNT Patreon: https://www.patreon.com/talien Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed bag. The good news is that it contains something for everyone. Plus: learn about how you can read or listen to books for free using your local library — maybe without even leaving your house. Library apps mentioned in this episode: Libby Hoopla Freegal Music Books mentioned in this episode: Leave the World Behind by Rumaan Alam The Giver by Lois Lowry Warrior Girl Unearthed by Angeline Boulley The Woman in Me by Britney Spears My Sister, the Serial Killer by Oyinkan Braithwaite Yellowface by R. F. Kuang Everyone Here Is Lying by Shari Lapena The Cloisters by Katy Hays Rebel Rising by Rebel Wilson I am Not Your Perfect Mexican Daughter by Erika L. Sanchez Once There Were Wolves by Charlotte McConaghy Hello, Molly! by Molly Shannon Leslie F*cking Jones by Leslie Jones Everything, Everything by Nicola Yoon Funny Story by Emily Henry Snowglobe by Soyoung Park Find Katie Connelly and the Chronically Ch(ill) Book Club at: Instagram Discord Server Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD165 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

What's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continuum. Amber Tresca talks with Michael Ornelas, host of the "Fine" Dining podcast, about his journey with IBD. Michael was first diagnosed with proctitis, then Crohn's disease, and later, maybe, with ulcerative colitis. Michael shares his experiences with symptoms, treatments, and the impact IBD has on life. But it's not all serious! Michael also talks about his comedy podcast, "Fine" Dining, which encompasses the search for mediocrity in chain restaurants. Maybe an unexpected choice for a project for person with IBD, so they also discuss Michael's unique perspectives on food. Find Michael Ornelas and the "Fine" Dining Podcast at: Web: https://www.finediningpodcast.com/ Tik Tok: @finediningpodcast Instagram: @finediningpodcast YouTube: @finediningpodcast Spotify: https://open.spotify.com/show/0YQGBigjvjtme7rYqrHZRw? Apple Podcasts: https://podcasts.apple.com/us/podcast/fine-dining/id1649646224 Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD164 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Alicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative colitis, the complications that led to an ileal anal anastomosis, the later diagnosis of Crohn's disease, and evebtyak J-pouch surgery. They also talk about the challenges of producing the podcast, the importance of therapy, and keeping up a social media presence. The conversation highlights the emotional and logistical aspects of creating a podcast about IBD. Select episodes of Bowel Moments: Bowel Moments Episode 1: Get to know your co-host Robin and Alicia! Bowel Moments Episode 6: A Tale of 2 Surgeries Bowel Moments Episode 20: Meet Robin's Daughters - Logan & Baylee! Find Robin and Alicia on Bowel Moments at: Web: BowelMomentsPod.com Facebook: @thebmpodcast Twitter: @bowelmomentspod Instagram: @bowelmomentspod LinkedIn: Bowel Moments Pod Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD162 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Stephanie Gish, host of the Crohn's Fitness Food podcast, gives the details of her journey with Crohn's disease and IGA nephropathy. Stephanie's Crohn's symptoms began in 2003, but she was initially misdiagnosed with an anal fissure. After being discharged from the Army for medical reasons unrelated to IBD, she went through years of fragmented care, and finally received a Crohn's diagnosis in 2009. Stephanie brought her knowledge of health and fitness to bear in managing Crohn's, but the diagnosis of IGA nephropathy had her changing course and rethinking her approach. Buy "Crohn's, Fitness, Food and My Rock Road to Health" at Amazon: PaperbackEbookAudiobook Find Stephanie Gish at: Crohn's Fitness Food@crohnsfitnessfoodCrohn's Fitness Food@stephlivsey@crohnsfitnessfood Find Amber J Tresca at: About IBDVerywell Health@aboutIBD@aboutIBD@aboutibd@about_IBD@AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: @maccooneycomposer@maccooneycomposer@MacCooneyComposerCooney StudioIBD Dance Party Episode transcript and more information at: https://bit.ly/AIBD161 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Amber interviews Alison McGauley, a teacher and author of "Kenzie's Little Tree," a children's book about a girl whose mother lives with chronic illness. Alison shares her journey with ulcerative colitis, irritable bowel syndrome (IBS), and ankylosing spondylitis, and how her hospitalization impacted her two daughters. She emphasizes the importance of talking about illness with children to help them process their emotions. Alison’s book, set to release in March 2025, aims to provide a narrative for families dealing with chronic illness. Pre-orders are available, with proceeds donated to Crohn's and Colitis Canada and the Arthritis Society. Buy Alison's book: https://www.alisonmcgauley.com/books/my-books Find Alison McGauley at: https://www.alisonmcgauley.com@author.alison.mcgauley@AlisonMcgauley@AlisonMcGauleyAuthor@alisonmcgauley Find Amber J Tresca at: About IBDVerywell Health@aboutIBD@aboutIBD@aboutibd@about_IBD@AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: @maccooneycomposer@maccooneycomposer@MacCooneyComposerCooney StudioIBD Dance Party Episode transcript and more information at: https://bit.ly/AIBD160 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Is it surprising to learn that some people living with IBD choose to have ostomy surgery? Hannah, a 24-year-old woman, shares her journey through the initial symptoms of IBD at the age of 15, to getting a diagnosis of ulcerative colitis. She describes how her symptoms worsened after diagnosis, including bleeding, bowel urgency, and fatigue, which led to multiple hospitalizations. Hannah advocated for surgery to treat her pancolitis, despite an initial difference of opinion with her medical team. After surgery, Hannah's symptoms were significantly improved and she regained a sense of normalcy in her life. Hannah discusses the pros and cons of choosing an ostomy over a J-pouch, the importance of quality of life, and how surgery could impact her future fertility. Concepts discussed on this episode: 10.1016/j.ctim.2023.10294610.1016/j.eclinm.2022.10130010.3831/KPI.2023.26.3.211 Find Hannah Martin-Spencer on: @hans_colitisjourney Find Amber J Tresca at: About IBDVerywell Health@aboutIBD@aboutIBD@aboutibd@about_IBD@AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: @maccooneycomposer@maccooneycomposer@MacCooneyComposerCooney StudioIBD Dance Party Episode transcript and more information at: https://bit.ly/AIBD159 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Christina King shares her journey with being diagnosed with Crohn's disease in 2021. She was misdiagnosed with gastritis and hemorrhoids, until her severe symptoms of rectal bleeding and weight loss, plus multiple trips to the emergency department led to a hospitalization. An in-patient colonoscopy finally led to a diagnosis of Crohn's, and she was finally able to get treatment and improve. She was unable to go to school with her high school graduating class, and is now ready to start pursuing her dream of becoming a nurse. Christina tells Amber where she went for information in the early days after diagnosis and how she's approaching accommodations for IBD as she begins school. Find Christina King at: @cking5498@christina_king227 Find Amber J Tresca at: About IBDVerywell Health@aboutIBD@aboutIBD@about_IBD@AboutIBD@about_IBD Find Mac Cooney (mix, sound design, and theme music) at: @maccooneycomposer@maccooneycomposer@MacCooneyComposerCooney StudioIBD Dance Party Episode transcript and more information at: https://bit.ly/AIBD158 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

The relationship between patient and physician in inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis) is so critical to the success of the management of the disease. Both the patient and the physician have roles to play in developing and maintaining a good working relationship. One such example of a truly special and inspirational patient-physician relationship is illustrated here between Dr Julie Spivack, a gastroenterologist with Connecticut GI, and Rosa, her patient. Rosa and Dr Spivack discuss their close bond and how the listening, empathy, honesty, and open-mindedness work to build trust and achieve successful outcomes in patient-physician relationships Find Julie Spivack, MD at: Connecticut GI Find Amber J Tresca at: About IBDVerywell Health@aboutIBD@aboutIBD@aboutibd@about_IBD@AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: @maccooneycomposer@maccooneycomposer@MacCooneyComposerCooney StudioIBD Dance Party Episode transcript and more information at: https://bit.ly/AIBD157 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Amber Tresca and Katie Connelly discuss the challenges and importance of workplace accommodations for individuals with inflammatory bowel disease (IBD). Katie has been through the process of asking for accommodations with different employers and shares her personal experience, emphasizing the need for understanding the Americans with Disabilities Act (ADA). She relates her experience and gives advice to both employers and employees on how to manage the accommodation journey. Plus, she gives the resources that she found most helpful to help her learn about her rights as an employee. Find Katie Connelly at: Katie ConnellyBadass With a Bad AssKatie Connelly@badass.w.a.bad.ass Find Amber J Tresca at: About IBDVerywell Health@aboutIBD@aboutIBD@aboutibd@about_IBD@AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: @maccooneycomposer@maccooneycomposer@MacCooneyComposerCooney StudioIBD Dance Party Episode transcript and more information at: https://bit.ly/AIBD156 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Amber is joined by Stacy Dylan, co-founder and executive director of Connecting to Cure Crohn's and Colitis (CtoC). CtoC is a patient advocacy group focused on addressing unmet needs in the IBD community. Stacy founded CtoC to help other families after her son was diagnosed with Crohn's disease. CtoC offers support groups, mentorship programs, and gut-friendly workouts. Stacy offers advice to parents of children with IBD, encouraging them to take things one step at a time and not be overwhelmed by information from the internet. Follow Connecting to Cure: https://www.connectingtocure.org@connecttocureInstagram:@connectingtocure@ConnectingToCure Follow Stacy’s Medium page at: https://stacyjdylan.medium.com. Find Amber J Tresca at: About IBDVerywell Health@aboutIBD@aboutIBD@aboutibd@about_IBD@AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: @maccooneycomposer@maccooneycomposer@MacCooneyComposerCooney StudioIBD Dance Party Episode transcript and more information at: https://bit.ly/AIBD155 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

There tend to be more women than men who share their journey with inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis). The reasons are challenging to uncover, but what's clear is that more can be done to raise the visibility of men living with an IBD, ostomy, or other digestive condition. My guest is Jordan William Henry Aggen, also known as Crohn's Trooper. Jordan emphasizes the importance of open communication, pre-planning, and finding support from friends, family, and social media to cope with the disease. Concepts discussed on this episode: Which is Nerdier: Star Wars or Star Trek? Find Jordan William Henry Aggen at: @JWHA2011@crohnstrooper Find Amber J Tresca at: About IBDVerywell Health@aboutIBD@aboutIBD@aboutibd@about_IBD@AboutIBD Find Mac Cooney (mix, sound design, and theme music) at: @maccooneycomposer@maccooneycomposer@MacCooneyComposerCooney StudioIBD Dance Party Episode transcript and more information at: https://bit.ly/AIBD154 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.